Bartol, Jordan (2012) Re-Examining the Gene in Personalized Genomics.

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Abstract

Personalized Genomics companies (PG; also called ‘Direct-to-Consumer Genetics’) are businesses marketing genetic testing to consumers over the Internet. While much has been written about these new businesses, little attention has been given to their roles in science communication. This paper provides an analysis of the gene concept presented to customers and the relation between the information given and the science behind PG. Two quite different gene concepts are present in company rhetoric, but only one features in the science. To explain this, we must appreciate the delicate tension between PG, academic science, public expectation, and market forces.

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Item Type:	Published Article or Volume
Creators:	Creators Email ORCID Bartol, Jordan phjnb@leeds.ac.uk
Additional Information:	To appear in Science and Education
Keywords:	Direct-to-Consumer Genetic Testing; DTC; Genes; Genetic Determinism; Science Communication; Public understanding of genetics
Subjects:	Specific Sciences > Biology > Molecular Biology/Genetics General Issues > Science and Society General Issues > Science Education
Depositing User:	Mr Jordan Bartol
Date Deposited:	30 May 2012 10:33
Last Modified:	30 May 2012 10:33
Item ID:	9127
Official URL:	http://dx.doi.org/10.1007/s11191-012-9484-2
Subjects:	Specific Sciences > Biology > Molecular Biology/Genetics General Issues > Science and Society General Issues > Science Education
Date:	2012
URI:	https://philsci-archive.pitt.edu/id/eprint/9127

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